Government Funding Bill Extends Telehealth Flexibilities, Averts Cap Cut

For Immediate Release
December 20, 2022 

(Alexandria, VA) Congress has released the text of the Consolidated Appropriations Act, 2023, an omnibus funding package that will fund the government through Fiscal Year 2023. As NHPCO advised its members in a Member Alert this morning, the legislation contains measures that will affect hospices positively and negatively. We expect the legislation to pass and be signed into law later this week.  

Key developments in this legislation include the following.  

      • Telehealth extension: The legislation extends hospice telehealth flexibilities through the end of 2024, which were initially enacted as part of the CARES Act in 2020. This allows hospice patients and providers to continue to use telehealth for low touch, face-to-face visits prior to recertification for the hospice benefit. Patients will also be able to continue to participate in telehealth visits from home. 
      • Continued slowdown of hospice caps: The legislation extends the cap calculation methodology implemented by the Improving Medicare Post-Acute Care Transformation (IMPACT) Act of 2014. For years that measure has slowed the growth of the hospice aggregate cap, reducing the total amount a hospice can be reimbursed for care provided to patients, as compared to the rates set prior to the IMPACT Act. The FY23 omnibus extends that IMPACT Act aggregate cap methodology by another year to 2032, meaning that for the next decade many hospices will have to do more with less to continue providing patient care. 
      • Cap cut avoided: Beyond extension of the IMPACT Act methodology, there was some consideration to MedPAC’s recommendation to outright decrease the hospice aggregate cap by 20 percent. That cut was averted, protecting hospice patients and providers.
      • Expanded definition of the IDT: The legislation will allow hospices, starting in 2024, to use marriage and family therapists (MFTs) and mental health counselors (MHCs) as part of the hospice interdisciplinary team. There is no requirement for hospices to use MFTs or MHCs and a social worker is still required if needed under a patient’s plan of care.
      • Focus on Grief and Bereavement: Noting that more Americans are experiencing grief due to COVID-19 losses, the bill designates $1,000,000 for assessing the feasibility of developing consensus-based quality standards for high-quality bereavement and grief care. It also directs the U.S. Department of Health and Human Services (HHS) Office of the Assistant Secretary for Planning and Evaluation (ASPE) to collaborate with other health officials to evaluate and report on the scope of need for high-quality bereavement and grief services, including a focus on the role of hospices in community services. 

“This package is a mixed bag for hospices. On the one hand, NHPCO members have been actively advocating for telehealth extension, against a 20 percent cap cut, and for national approaches to supporting grief and bereavement services. Those provisions are wins for patients, families, and communities across the country, as is the inclusion of marriage and family therapists and mental health counselors as part of the hospice interdisciplinary team,” said NHPCO COO and interim CEO, Ben Marcantonio “Thank you to everyone who has reached out to their elected officials on these issues. On the other hand, Congress has extended the slowdown of the growth of the hospice aggregate cap, even though the evidence shows that the seven percent reductions already implemented through the IMPACT Act have limited access to hospice care among patients with Alzheimer disease and other dementias.” 

Marcantonio continued, “Avoiding an across-the-board cap cut, while facing continued slowdown of cap growth is like two steps forward, one step back. Forty years after the creation of the Medicare Hospice Benefit, in bleak economic times, Congress has decided to put to the next ten years of hospice care at risk by continuing to recklessly use hospice as an ATM.” 

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Press Contact:
Madison Summers
NHPCO Communications
Ph: 571-412-3973 

NHPCO Facts and Figures Report Shows Growing Number of Hospice Patients 

For Immediate Release
December 15, 2022 

(Alexandria, Va) – The National Hospice and Palliative Care Organization (NHPCO) published the 2022 edition of NHPCO Facts and Figures, an annual report on key data points related to the delivery of hospice care, including information on patient characteristics, location and level of care, Medicare hospice spending, and hospice providers. NHPCO Facts and Figures is the premier resource for hospice providers and others interested in understanding the work of the community.  

Based on the most recent available data, which is from 2020, this is the first year in which NHPCO Facts and Figures includes information on COVID-19. Among Medicare hospice patients in 2020, 0.9% had a principal diagnosis of COVID-19. While COVID-19 may have contributed to the deaths of beneficiaries with other principal diagnoses, that would not show up in these data.  

Select findings from this year’s report include the following:  

      • Growth in number of hospice patients: 1.72 million eligible Medicare beneficiaries chose hospice care in 2020. This is a 6.8% increase from 2019, representing the largest recent year-over-year increase in the number of Americans choosing hospice care, both in absolute numbers and as a percentage.
      • Decrease in percentage of eligible patients served: In 2020, more Americans died than in any previous year on record, and the percentage change in the number of deaths was significantly higher than any time in the last decade. The number of deaths grew significantly faster than hospice enrollment, in large part because of COVID-19. After several years of growth, the percentage of Medicare decedents enrolled in hospice at the time of death (47.8% in 2020) dropped to the lowest number since 2013 (47.3%). 
      • Changes in race and ethnicity of hospice patients: White Medicare beneficiaries eligible for hospice care choose to enroll at higher rates than other Americans. Over the last two decades, there has been progress in the diversity of hospice patients, with more hospice-eligible Asian Americans, Black Americans, Hispanic Americans, and Native Americans choosing hospice care. However, the report shows that this year, fewer Asian, Black, Hispanic, and Native American chose hospice compared to the previous year.   
      • Continued trends in principal diagnoses: In the last 20 years, there has been a significant shift in the primary diagnoses of patients in hospice care. In 2002, cancer was the largest driver of hospice care. Since then, Alzheimer’s disease and other forms of dementia along with Parkinson’s disease have become the largest grouping of principal diagnoses. While the Alzheimer’s/dementias/Parkinson’s grouping declined slightly in 2020 compared to 2019, the overarching mix of diagnoses aligns to the trends of the last six years, which look different from the mix of the 2000s and early 2010s.  

NHPCO COO and interim CEO, Ben Marcantonio, said, “I know providers who rely on NHPCO Facts and Figures to benchmark their own programs and it is one of the most-cited reports about hospice care. As the hospice community marks the 40th anniversary of the hospice benefit, it’s a natural time to look ahead to what hospice can and should be over the next 40 years. Facts and Figures is an essential resource for informing those conversations as we continue to strive to provide the best care to help patients live their final days to the fullest.”  

The 2022 NHPCO Facts and Figures report is available on the NHPCO website 

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Press Contact:
Madison Summers
NHPCO Communications
Ph: 571-412-3973 

NHPCO Publishes Hospice Through the DEI Lens Research Report

For Immediate Release
December 13, 2022 

The National Hospice and Palliative Care Organization (NHPCO) Diversity Advisory Council (DAC) published the results of a first-of-its-kind research exploring perceptions of hospice care among African American/Black, Hispanic/Latino, and LGBTQ+ communities. This survey of 1,200 people is part of the NHPCO DAC’s commitment to health equity; to understanding hospice through the lens of diversity, equity, and inclusion (DEI); and to breaking down breaking down barriers to accessing hospice and palliative care through knowledge sharing, data collection, and collaborative discussion. Along with key research findings, the Hospice Through the DEI Lens report offers recommendations for hospice providers to help increase understanding of hospice care and help overcome barriers to access. In releasing the findings, the NHPCO DAC also noted its intention to expand this research in 2023 to include additional populations.  

Key findings and recommendations include:  

      • Finding: Across all populations surveyed, large percentages of respondents agree that “Doctors often wait too long to talk about hospice,” leading to a “crisis decision.” That sentiment is particularly pronounced among LGBTQ+ respondents, 44% of whom strongly or somewhat agree.  
          • Recommendations: Hospice providers should offer in-services to healthcare providers on how to have conversations about hospice with patients and families and share this data set with referral partners. 
      • Finding: Compared to White (52%) respondents, Black (39%) and Hispanic (41%) respondents are less likely to be aware that hospice is a benefit covered by Medicare. 
          • Recommendations: Black and Hispanic caregivers should be advised early on of the hospice benefits offered by Medicare, as well as the typical costs of hospice for those with Medicaid or private insurance. Ensure understanding that hospice is an at-home option that is covered by their benefits. Clearly explain how the Medicare hospice benefit works. This can be on the hospice organization’s website AND printed collateral. 
      • Finding: Compared to White respondents, Black respondents are significantly more likely (21% vs 11%) to feel more comfortable with hospice workers who are the same ethnicity as their loved one. 
          • Recommendations: The desire for cultural similarity further underscores the need for diversity at all levels of hospice staff and leadership. Prioritize your organization’s commitment to culturally proficient care and give concrete examples of what you’re doing in both internal and external communications. Provide ongoing education to your staff to address cultural issues important to your community. 
      • Finding: Among Hispanic/Latino communities, language can be a significant barrier for non-native English Speakers. More than half (52%) of Hispanic respondents said that in order to feel comfortable they would need hospice workers who spoke their loved one’s language. 
          • Recommendations: Written materials (both print and digital) should be available in a variety of languages. Even if a patient and/or their loved ones can read English, offering materials in their native language, and in a culturally appropriate way, demonstrates a commitment to honoring their culture. Diversity of language is a key component to overall diversity. Hospice organizations should ensure language diversity that mirrors that of their patient population. Develop best practices for engaging with interpreters to ensure all communications maintain the qualities of care and compassion. 
      • Finding: Nearly 1/3 of LGBTQ+ respondents doubt or are unsure that hospice would respect their sexuality. 
          • Recommendations: Prospective LGBTQ+ clients need reassurance that they will be treated with respect. Consistently collect patient demographic information, including gender identity and preferred pronouns. 

NHPCO COO and Interim CEO, Ben Marcantonio, said, “Even as hospice uptake has grown nationally for the last two decades, we continue to see that White Americans chose hospice at higher rates than Hispanic, Black, Asian, and Native Americans. While national data sets are not available to get a full picture of hospice uptake by sexual or gender identity, we know anecdotally that many LGBTQ+ individuals have significant hesitancies when it comes to hospice. NHPCO members are committed to improving equitable access to care for all communities, and we are pleased to be able to provide resources like this report to help advance the national conversation.”   

NHPCO DAC Chair, Nicole McCann-Davis, said, “The Hospice Through the DEI Lens report offers fresh insights and practical advice for hospice providers to continue improving equitable access to culturally competent care in their communities. Regardless of where a provider is in their health equity journey, there are recommendations for everyone. The report also adds to a slate of resources available at nhpco.org/diversity. Out of NHPCO’s commitment to diversity, equity, and inclusion as a public good, we make the most of these resources available to both members and non-member organizations.”  

To access the report and other NHPCO DEI resources, visit nhpco.org/diversity 

Hospice Action Network Honors Congressional Champions with Angel Award

For Immediate Release
December 07, 2022 

(Alexandria, VA) – The Hospice Action Network (HAN), the advocacy affiliate group of the National Hospice and Palliative Care Organization (NHPCO), is pleased to announce its 2022 Hospice Action Network Angel Award Honorees. This award was created to recognize select members of Congress on both sides of the aisle for their ongoing efforts to amplify the voices of patients, families, providers, and those advocating for the vital mission of hospice and palliative care in supporting patients and their families facing serious or life-limiting illness.

This year’s award recipients are as follows:

Senator Tammy Baldwin (WI)
Senator John Barrasso (WY)
Senator Shelley Capito (WV)
Senator Catherine Cortez Masto (NV)
Senator Roger Marshall (KS)
Senator Lisa Murkowski (AK)
Senator Jacky Rosen (IL)
Congressman Earl Blumenauer (OR-3)
Congressman Vern Buchanan (FL-16)
Congressman Steven Horsford (NV-4)
Congresswoman Carol Miller (WV-3)
Congressman Joe Morelle (NY-25)

The honorees expressed their appreciation for the recognition.

“As someone who spent time as the primary caregiver for my grandmother, I know the world of difference it makes in someone’s life to have compassionate palliative care,” said Senator Baldwin. “I’m deeply honored to receive the 2022 Hospice Action Network Angel Award and remain committed to enhancing access to palliative and hospice care services to help improve the quality of life for the millions of Americans managing serious illnesses.”

“I have experienced hospice care as both a doctor and family member.” said Senator Barrasso. “Hospice lets patients enjoy the highest quality of life when they need it most. I am proud to support all the dedicated hospice providers in Wyoming and across the country. It is an honor to once again be recognized by the hospice community and I will continue supporting efforts to improve hospice care in the years ahead.”

“I have seen firsthand the impact that hospice and palliative care can have on patients, and personally felt the support it provides as someone who cared for aging parents,” said Senator Capito. “That is why I have been, and continue to be, committed to making sure these critical services are available in communities across West Virginia, including our more rural areas. It is important that we take action now to grow, improve, and sustain the palliative and hospice care workforce, and recognize their importance and dedication. I am so honored to be recognized as a 2022 Hospice Action Network Angel, and I will continue to push for legislative solutions to help improve the well-being of Americans with life-threatening illnesses and their families.”

“Hospice and palliative care provide critical comfort to people all over the Silver State,” said Senator Cortez Masto. “I’m proud to partner with Hospice Action Network to support Nevadans facing serious illness, and I’ll continue working in the Senate to make sure all Nevadans have access to affordable, quality health care.”

“I collaborated with compassionate and talented palliative and hospice professionals during my time as both a practicing physician and hospital manager,” said Senator Roger Marshall. “I have the utmost respect for the professionals who perform this work in health care systems across the country, and it is an honor to receive NHPCO’s Hospice Action Network Award for a second time since I came to Congress in 2017.”

“Hospice and palliative care can be challenging topics to discuss as they are so personal, but the immense benefits they provide for patients and their families cannot be overstated. These services have the potential to improve quality of life, reduce physical and mental stress, and help patients better understand the best options of care for their unique circumstances—something we should all want for the people we care about,” said Senator Murkowski. “I commend all those who provide hospice and palliative care services. It’s an honor to be recognized with this award, and I look forward to continuing my work to drive policy initiatives on behalf of providers and the patients they care for.”

“I’m honored to be recognized by the National Hospice and Palliative Care Organization for my work to provide patients and families in Nevada and across the country better access to comprehensive health services, including hospice and palliative care,” said Senator Rosen. “I will continue to lead on this issue and look forward to working with the nation’s hospice and palliative care providers to make sure that patients and their families receive the best care possible.”

“Making sure that patients and families understand their choices and have their wishes respected has long been a passion of mine,” said Congressman Blumenauer. “I was the ‘death panel guy’ and the object of Sarah Palin‘s ‘Lie of the Year’ as I fought to ensure that the federal government assigned value to understanding and protecting patients’ end of life wishes. The amazing work of people who provide critical hospice and palliative care should be celebrated and protected. Our struggle to make sure that everybody understands and takes advantage of these services continues, and the federal government must keep pace.”

“Hospice and palliative care workers go above and beyond to provide compassionate care to patients and their families,” said Congressman Buchanan. “I’m honored to be recognized by the Hospice Action Network and will continue my work in Congress to support patients and promote access to quality end-of-life care.”

“I am proud to accept the 2022 Hospice Action Network Angel Award,” said Congressman Horsford. “So many families across Nevada and around the country count on hospice and palliative care providers during one of the most difficult times they will face. That is why I have made it a priority to improve training and education opportunities for the health professionals who work in the hospice and palliative care industry and have advocated for strengthening home and community-based care services as part of our nation’s caregiving infrastructure.”

“I’m honored to receive the 2022 Hospice Action Network Angel Award,” said Congresswoman Miller. “Hospice and palliative care providers play an invaluable role in our communities, and I will continue my work in Congress to support this important industry and the outstanding people who make it whole.”

“I want to thank the National Hospice and Palliative Care Organization for the honor of being named the winner of the 2022 Hospice Action Network Angel Award,” said Congressman Joe Morelle. “I’m grateful for their continued support as we’ve worked to get the GRIEF Act introduced in the House of Representatives—legislation I authored to help end the stigma around mental health and ensure families can access the essential support they deserve during challenging times. Again, thank you to everyone at the NHPCO for this award, and I look forward to our continued work together to create a culture of awareness and support for those who need it most.”

NHPCO and HAN are proud to recognize these lawmakers for their ongoing efforts.

“Thank you to our HAN Angel Recipients for their leadership and support of hospice and palliative care patients and families across our country who rely on person-centered, interdisciplinary care during their greatest time of need,” said Executive Director of HAN, Logan Hoover.

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Contact:
Madison Summers
Marketing and Communications Manager
571-412-3973

Endorsement of Improving Access to Advance Care Planning Act

(Alexandria, VA) – The National Hospice and Palliative Care Organization (NHPCO) and its advocacy affiliate, the Hospice Action Network (HAN), are pleased to endorse the Improving Access to Advance Care Planning Act (S.4873/H.R. 8840), sponsored by Senators Mark Warner (D-VA), Susan Collins (R-ME), Tammy Baldwin (D-WI), Amy Klobuchar (D-MN) and Congressman Earl Blumenauer (D-OR), which will take crucial next steps to expand access to advance care planning by allowing social workers to facilitate these important conversations and removing beneficiary cost-sharing for advance care planning. The bill will also improve reporting of barriers to advance care planning and increase education for providers on coding for advance care planning visits.

“Each and every person should have a say in what happens to them when they experience serious illness and the end of life. Families, loved ones, and providers need to be aware of individuals’ wishes to ensure they are provided appropriate care, even when they cannot advocate for themselves,” said NHPCO COO and interim CEO Ben Marcantonio, “Advance care planning at its best is a series of ongoing conversations that have patients in the driver’s seat. Providers that facilitate those conversations, including social workers, should be valued for the work they do. NHPCO and HAN look forward to continuing to work with Congressional leaders to ensure that access to these conversations is protected and expanded.”

Join HAN in advocating for the Improving Access to Advance Care Planning Act by calling on your Members of Congress to cosponsor the bill.

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Contact:
Madison Summers
Marketing and Communications Manager
571-412-3973

Hospice Organizations Respond to ProPublica Hospice Article

For Immediate Release
November 30, 2022

(Alexandria, Va) – An article on hospice care published by ProPublica on November 28 (Endgame: How the Visionary Hospice Movement Became a For-Profit Hustle), 2022, gives readers an inaccurate view of the Medicare hospice benefit, a uniquely person-centered program that brought comfort to 1.7 million Americans and their families in 2020.

The article utilizes a few instances of abuse by bad actors to assert that hospice has lost its way. While we condemn fraudulent or abusive behavior, the vast majority of hospice providers remain true to its historic mission of providing comfort and relief from suffering to individuals at the end of life and support to their loved ones. This is evidenced by Centers for Medicare & Medicaid Services (CMS) data indicating that 81 percent of families/caregivers utilizing the Medicare benefit give the hospice an overall rating of 9 or 10 (with 10 being the best) and 84 percent would recommend hospice to family and friends.

Where inappropriate activity is occurring in hospice, the National Association for Home Care & Hospice (NAHC), the National Hospice and Palliative Care Organization (NHPCO), hospices across the country, and other stakeholders have urged meaningful action, including our support for increasing the frequency with which hospice providers are reviewed for compliance with important health and safety standards (Medicare’s Hospice Conditions of Participation). Further, in 2019, NAHC, NHPCO, and other national hospice organizations helped craft a series of hospice survey reforms that were enacted in the Hospice Act of 2020, which are currently being put in place. We expect these reforms, once fully implemented, to provide additional quality of care safeguards in the hospice benefit.

More recently, NAHC, NHPCO, and other national organizations have been deeply concerned about the disproportionate growth in the number of hospices in some states. In November 2022, NAHC, NHPCO, and two other national hospice organizations wrote to CMS Administrator Chiquita Brooks-LaSure, urging further investigation of the proliferation of hospices in some states and to suggest targeted moratoria in trouble areas of the United States.

“We must all do our part to ensure that hospice remains a viable choice for terminally ill patients and their loved ones,” said NAHC President William A. Dombi. “Unfortunately, articles of this type may unwittingly discourage use of hospice care, thereby denying terminally ill patients and their families access to vital services that support and comfort them during and in the aftermath of one of life’s most difficult journeys.”

NHPCO COO and Interim CEO, Ben Marcantonio, said, “I’m proud to say the hospice community is the most active and vocal voice for measures that ensure the high quality of hospice care. The ProPublica article does a disservice by spotlighting the stories of bad actors, and using those to unfairly label the entire hospice community. Every day, tens of thousands of hospice professionals dedicate their lives to helping millions of Americans through their end-of-life journeys, and each year more Americans choose hospice because it matters to them and their loved ones.”

The hospice benefit is popular, well-regarded, and saves taxpayer dollars compared to keeping terminally ill patients in hospitals or other institutional centers of care. NAHC, NHPCO, and our members look forward to working with federal and state policymakers to implement solutions to address the isolated problems highlighted by the article without jeopardizing access to the Medicare hospice benefit.

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Contact:
Madison Summers
Marketing and Communications Manager
571-412-3973

NHPCO Welcomes Senate Proclamation Honoring National Hospice and Palliative Care Month

For Immediate Release
November 29, 2022 

(Alexandria, Va) – This week, the U.S. Senate officially recognized November as National Hospice and Palliative Care Month. The National Hospice and Palliative Care Organization (NHPCO) and its affiliate group, the Hospice Action Network (HAN), express our gratitude for this important recognition of the essential work of hospice and palliative care providers and volunteers across the country.

2022 marks the fortieth anniversary of the first Proclamation recognizing November as National Hospice Month. In 1982, President Ronald Regan signed into law the Medicare Hospice benefit which ensured that millions of seriously ill Americans could die with dignity while receiving care in their own homes. That same year, the president also declared a National Hospice and Palliative Care Week, which we now celebrate as National Hospice and Palliative Care Month.

“Every day, hospice and palliative care workers and volunteers provide unique, person-centered, interdisciplinary care to people who have a serious illness or those who are approaching the end of life. Palliative and hospice care help patients have the best quality of life and live out the time they have left in a way that reflects their heartfelt values, minimizes pain, and maximizes comfort. We were so pleased to work closely with Senate offices on this proclamation, and we thank the U.S. Senate for recognizing the importance of hospice and palliative care. Special appreciation goes to four Senators who have shown leadership on this issue and who introduced the Resolution: Senator Jacky Rosen, Senator John Barrasso, Senator Tammy Baldwin, and Senator Deb Fischer,” said NHPCO COO and interim CEO Ben Marcantonio.

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Contact:
Madison Summers
Marketing and Communications Manager
571-412-3973

 

Four Organizations ask CMS for Increased Oversight to Curb Potential Fraud

For Immediate Release
November 21, 2022 

The four preeminent national hospice organizations – LeadingAge, the National Association for Home Care & Hospice (NAHC), the National Hospice and Palliative Care Organization (NHPCO) and the National Partnership for Healthcare and Hospice Innovation (NPHI) – are concerned by reports of rapid proliferation of newly certified hospice agencies in a handful of states that could create opportunities for fraud and abuse in the Medicare and Medicaid programs. The four organizations recently wrote a joint letter to U.S. Centers for Medicare & Medicaid Services (CMS) Administrator, Chiquita Brooks-LaSure, requesting a meeting about this important issue and encouraging “increased federal oversight…to protect hospice patients and their families, as well as the vast majority of hospice providers that properly observe Medicare and Medicaid laws and regulations.”

Press Contact: 
Madison Summers 
NHPCO Communications 
Ph: 571-412-3973 

NHPCO Recognizes National Hospice and Palliative Care Month

For Immediate Release
October 31, 2022 

Meeting You Where You Are

(Alexandria, VA) – The beginning of November marks the start of National Hospice and Palliative Care Month (HAPCM). This year’s theme, “meeting you where you are” symbolizes providers meeting patients and their loved ones where they are, be it literally through serving them in the comfort of their own homes, spiritually in tailoring support to their unique beliefs, or emotionally by helping them to understand that choosing hospice does not mean giving up hope or quality of life. The National Hospice and Palliative Care Organization (NHPCO) has materials available online for members to utilize throughout November in recognition of HAPCM.

“The numerous National Hospice and Palliative Care Month activities taking place online and across our members’ communities will raise awareness of the important work being done every single day to care for those living with serious or life-limiting illnesses,” said NHPCO COO and interim CEO, Ben Marcantonio. “This is an impactful opportunity to engage in a national conversation about the importance of serious-illness and end-of-life care that is patient-centered and goal-oriented.”

NHPCO encourages all individuals and organizations to participate in National Hospice and Palliative Care Month’s Social Media Action Day on Friday, November 4, 2022, using the hashtag #HAPCM (guide available for download by NHPCO members only). Members will also find a range of  National Hospice and Palliative Care Month outreach resources online in the Community Outreach Resource section of the website.

For additional information on hospice, palliative care, coping with serious illness, advance care planning and more, please visit NHPCO’s consumer website, www.CaringInfo.org.

Press Contact: 
Madison Summers 
NHPCO Communications 
Ph: 571-412-3973 

NHPCO-Led Coalition Welcomes Introduction of GRIEF ACT in Congress

For Immediate Release
September 30, 2022 

(Alexandria, VA) The National Hospice and Palliative Care Organization (NHPCO) and its affiliate group, the Hospice Action Network (HAN) applaud today’s introduction of the Grief Resilience Investment and Education Fund (GRIEF) Act in the House of Representatives by Congressman Joe Morelle (NY-25).

If passed, the GRIEF Act would expand access to bereavement care by providing grant funding for health care providers, like hospices, to expand previously unfunded community grief support programs.

As a result of the COVID-19 pandemic, grieving individuals, families, children, and communities need access to timely bereavement care that is provided by experts who are knowledgeable, experienced, and trained in helping others cope with grief. This legislation aims to ensure that Americans who have suffered from loss receive the care they need and deserve.

“For too long, mental health needs have gone unaddressed, casting a shadow over families contending with significant loss—especially during the pandemic, said Congressman Joe Morelle. “Establishing a National Grief Strategy will help people move forward with the help of skilled professionals creating a culture of awareness and support. It is my hope that this legislation helps end the stigma around mental health and ensure families can access the essential support they deserve.”

The bill provides funding for grief counseling for individuals and families, bereavement care for children, education and training for bereavement care providers and peer support, a national public information campaign, and research to examine the experience of complicated and prolonged grief and the efficiency of treatment approaches.

As the leading voice of the hospice community, NHPCO worked in collaboration with supporting organizations to garner Congressional support for this bill. Support comes from the American Psychological Association (APA), the Hospice Foundation of America (HFA), and the Social Work Hospice and Palliative Care Network (SWHPN).

“Compassion for individuals experiencing loss is at the heart of the collective hospice and palliative care community,” said Ben Marcantonio, COO and interim CEO of NHPCO and HAN. “The ongoing impacts of the COVID-19 pandemic have increased the urgency to care for grieving individuals, families, and communities. Many hospices are currently providing bereavement support to their communities without any funding. We are grateful for Representative Morelle’s leadership in moving this important legislation forward.” The GRIEF Act will ensure that Americans who have been directly impacted by loss receive the care they need and deserve.

Join the Hospice Action Network in advocating for this bill.

Press Contact: 
Madison Summers 
NHPCO Communications 
Ph: 571-412-3973