Pediatrics Professional Resources

Pediatric palliative and hospice care providers work in interdisciplinary teams to deliver family-centered care that includes the child and family as one unit of care, respecting individual preferences, values, and cultural beliefs, with the child and family active in decision-making regarding goals and plan of care.

Children are not small adults. Developmental differences among infants, children, and adolescents affect diagnosis, prognosis, treatment strategies, communication, and decision-making processes present challenges to adult providers who do not have training or experience in caring for children. However, at times adult providers will provide care for pediatric patients and should be prepared for their unique needs.

NHPCO Resources

• • • Tips for Adult Providers Caring for a Pediatric Patient (August 2023)
    • NHPCO Pediatric Facts and Figures Report (2023 Edition)
    • Standards of Practice for Pediatric Palliative Care (March 2022)
    • Determination of Hospice Medication Coverage in Children (Oct. 2020)
    • Concurrent Care for Children Implementation Toolkit (Oct. 2019)
    • Palliative Care Resource Series – NHPCO member only benefit

Other Resources

• • • American Academy of Pediatrics – Section on Hospice and Palliative Medicine
    • American Academy of Hospice and Palliative Medicine
    • List of Palliative Care Physicians from AAHPM
    • Hospice and Palliative Nurses Association

Related Pediatric E-Journal Issues

• • • Issue 59: Ethical Issues in Pediatric Palliative/Hospice Care (May 2020)

Education

• • • NHPCO Webinars/On-Line Learning/Conferences
      • • Cultural Humility in Pediatric Care (Project ECHO Session–Recorded March 2, 2023)

• • • External Education
      • • Center to Advance Palliative Care Palliative Care Leadership Center
        • Accreditation Council for Graduate Medical Education
        • American Association of Colleges of Nursing: End-of-Life Care
        • Pediatric Palliative Care Webinar Series

Marketplace

• • • Handbook of Adolescent Death & Bereavement

Have a question or find a broken link? Email us at pediatrics@nhpco.org.